This Isn't the Way I Thought It Would Be: Coping with a Child's Chronic Illness
Vol. 2009 No. 2, Historical Fact Sheets
Vol. 2009 No. 2

This Isn't the Way I Thought It Would Be: Coping with a Child's Chronic Illness: FCS2295/FY1079, 1/2009

Historical Fact Sheets
https://doi.org/10.32473/edis-fy1079-2009
Published 2009-04-02
Ashley Eckes
Heidi Liss Radunovich
University of Florida
Susan Brumbaugh
EDIS Cover Volume 2009 Number 2 education image
PDF-2009

Keywords

FY1079

How to Cite

Eckes, Ashley, Heidi Liss Radunovich, and Susan Brumbaugh. 2009. “This Isn’t the Way I Thought It Would Be: Coping With a Child’s Chronic Illness: FCS2295/FY1079, 1/2009”. EDIS 2009 (2). Gainesville, FL. https://doi.org/10.32473/edis-fy1079-2009.
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Abstract

FCS-2295, a 7-page fact sheet by Ashley Eckes, Heidi Liss Radunovich, and Susan Brumbaugh, provides parents guidance through the process of finding out that their child has a chronic illness, how the diagnosis may affect the child and the family unit, and sources of help and support. Includes references. Published by the UF Department of Family Youth and Community Sciences, January 2009.

 

https://doi.org/10.32473/edis-fy1079-2009
PDF-2009

References

American Cancer Society (2007). What are the key statistics about childhood leukemia? Retrieved October 31, 2008, from the American Cancer Society Web site: http://www.cancer.org.

Center for Effective Parenting (1997). How parents can help their child cope with chronic illness. Retrieved July 22, 2007, from Center for Effective Parenting Web site: www.parenting-ed.org.

Cohen, M. S. (1999). Families coping with childhood chronic illness: A research review. Families, Systems & Health, 17, 149-164. https://doi.org/10.1037/h0089879

Garralda, M. E., Rangel, L., (2004). Impairment and coping in children and adolescents with chronic fatigue syndrome: A comparative study with other paediatric disorders. Journal of Child Psychology and Psychiatry, 45(3), 543-552. https://doi.org/10.1111/j.1469-7610.2004.00244.x

Hilden, J., & Tobin, D. R. (2003). Shelter from the storm: Caring for a child with a life-threatening condition. Cambridge, MA: Perseus Press.

Hummelinck, A., & Pollock, K. (2006). Parents' information needs about the treatment of their chronically ill child: A qualitative study. Patient Education and Counseling, 62, 228-234. https://doi.org/10.1016/j.pec.2005.07.006

Katz, S. (2002).When the child's illness is life threatening: Impact on the parents. Pediatric Nursing, 28(5), 453-463.

Kotchick, B. A., Forehand, R., Armistead, L., Klein, K., & Wierson, M. (1996). Coping with illness: Interrelationships across family members and predictors of psychological adjustment. Journal of Family Psychology, 10(3), 358-370. https://doi.org/10.1037/0893-3200.10.3.358

Melnyk, B. M., Feinstein, N. F., Moldenhouer, Z., & Small, L. (2001). Coping in parents of children who are chronically ill: Strategies for assessment and intervention. Pediatric Nursing, 27(6), 548-558.

Morison, J. E., Bromfield, L. M., & Cameron, H. J. (2003). A therapeutic model for supporting families of children with a chronic illness or disability. Child and Adolescent Mental Health, 8(3), 125-130. https://doi.org/10.1111/1475-3588.00058

Perrin, E. C., West, P. D., Culley, B. S. (1989). Is my child normal yet? Correlates of vulnerability. Pediatrics, 83(3), 355-363.

Singer, A. T. (1999). Coping with your child's chronic illness. San Francisco, CA: Robert D. Reed Publishers.

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