Abstract
This 4-page document is part of a series which addresses end-of-life concerns, entitled The Art of Goodbye. The publication discusses the Patient Self-Determination Act, advance care planning, and communication about advance care planning. Written by Lynda Spence, and published by the UF/IFAS Department of Family, Youth and Community Sciences, July 2018.
http://edis.ifas.ufl.edu/fy1471
References
American Bar Association. (2018). Health care advance directives. Law for Older Americans. Accessed on May 24, 2018. https://www.americanbar.org/groups/public_education/resources/law_issues_for_consumers/patient_self_determination_act.html
Centers for Medicare & Medicaid Services. (2016). Advance care planning. Accessed on May 24, 2018. https://www.cms.gov/Outreach-and-Education/Medicare-Learning-Network-MLN/MLNProducts/Downloads/AdvanceCarePlanning.pdf
Centers for Medicare & Medicaid Services. (2015). On its 50th anniversary, more than 55 million Americans covered by Medicare. CMS.gov. Accessed on April 30, 2016. https://www.cms.gov/Newsroom/MediaReleaseDatabase/Press-releases/2015-Press-releases-items/2015-07-28.html
Epner, D. E. & Baile, W. F. (2014). Difficult conversations: Teaching medical oncology trainees communication skills one hour at a time. Acad. Med., 89(4), 578-584. https://doi.org/10.1097/ACM.0000000000000177
Graham, Judith. (2014). IOM report calls for transformation of end-of-life care. JAMA. Accessed on May 24, 2018. https://jamanetwork.com/journals/jama/fullarticle/1930814?utm_source=Silverchair%20Information%20Systems&utm_medium=email&utm_campaign=MASTER:JAMALatestIssueTOCNotification11/11/2014
https://doi.org/10.1001/jama.2014.13254
Henry J. Kaiser Family Foundation. (2015). 10 FAQs: Medicare's role in end-of-life care. Accessed on April 21, 2016. http://files.kff.org/attachment/fact-sheet-10-faqs-medicares-role-in-end-of-life-care
Henry J. Kaiser Family Foundation. (2017). Medicare Advantage. Medicare. Accessed on April 30, 2016. https://www.kff.org/medicare/fact-sheet/medicare-advantage/
Kelley, A. S., Back, A. L., Arnold, R. M., Goldberg, G. R., Lim, B. B., Litrivis, E., Smith, C. B., & O'Neill, L. B. (2012). Geritalk: Communication skills training for geriatrics and palliative medicine fellows. J. Am. Geriatr. Soc., 60(2), 332-337. https://doi.org/10.1111/j.1532-5415.2011.03787.x
Kelley, K. (1995). The Patient Self-Determination Act: A matter of life and death. Physician Assist., 19(3), 49, 53-6, 59-60.
Larson, D. G. & Tobin, D. R. (2000). End-of-life conversations: Evolving practice and theory. JAMA, 284(12), 1573-1578. doi: 10.1001/jama.284.12.1573. https://doi.org/10.1001/jama.284.12.1573
National Academy of Sciences. (2014). Dying in America-Improving quality and honoring individual preferences near the end of life. Institute of Medicine of the National Academies. Accessed on May 24, 2018. http://nationalacademies.org/hmd/~/media/Files/Report%20Files/2014/EOL/Report%20Brief.pdf
Pew Research Center. (2010). Baby boomers retire. Pew Research Center. Accessed on July 25, 2016. http://www.pewresearch.org/fact-tank/2010/12/29/baby-boomers-retire/
Rhodes, R., Tindall, K., Xuan, L., Paulk, M. E., & Halm, E. A. (2014). Communication about advance directives and end-of-life care options among internal medicine residents. American Journal of Hospice and Palliative Care, 262-268. https://doi.org/10.1177/1049909113517163
Schell, J. O. & Arnold, R. M. (2012). NephroTalk: Communication tools to enhance patient-centered care. Semin. Dial., 25(6), 611-616. https://doi.org/10.1111/sdi.12017
Smith, S. & Spence, L. (2016). The Art of Goodbye: Why People Are Talking About the End of Life. FCS3337. Gainesville: University of Florida Institute of Food and Agricultural Sciences. http://edis.ifas.ufl.edu/fy1468
Unless otherwise specified, articles published in the EDIS journal after January 1, 2024 are licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 4.0 International (CC BY-NC-ND 4.0) license.